So, it's been about a week since I've been completely off the prednisone. The first few days I was a little nervous because the pain started creeping back in...sore knuckles on one hand one day, two knuckles on the other hand the next day...a sore wrist, then two painful thighs...
But now things seem to have balanced out and I'm doing OK. I have some pain in my back, but taking a couple Advil is enough. I'm very relieved, I was pretty worried that the pain would all come back when I stopped the prednisone completely.
So, I'm still feeling pretty draggy, it's still hard to get stuff done. I have a little pink in the nose and cheeks, but most of the rash is gone. I'm not sure if the flare is totally gone, or if the plaquenil is kicking in, but I feel pretty good thank goodness.
I've started having little "chats" with my immune system, telling it that it really doesn't have to work so hard and that maybe it wants to take a vacation? Maybe it's working! :)
I had more tests done last Friday, hopefully the results will come back soon and they will be better than the last round...
