It seems that the plaquenil is actually kicking in. I've been on plaquenil for about 5 months now, and am feeling pretty good. Most of the aches and pains are gone, though my pre-lupus pain in my lower back/hip area seems to have come back...so strange.
I'm still having skin issues - lesions on various parts of the body, rash on face, losing hair (hate that one...) - but at least none of these are painful.
I'm pretty much living life as if I don't have lupus. I am trying to simplify if possible, but I've decided that I might as well live my life how I want to while I can...seize the day and all that... :D
I've lost a bunch of weight. It's hard to tell exactly how much because before the lupus I was pregnant, then had the baby and was nursing...so I lost a lot of weight after the baby was born and it just sortof kept going. It really feels weird to be so skinny - around 110 lbs. I haven't been this small since high school. It's nice to be skinny, but think I'd rather be fatter with no lupus than skinny with lupus...
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