I've stopped taking Savella and Imuran. The good news is that my fatigue/dragginess/wonky feeling is gone! I can get stuff done again, I am so relieved!
The bad news is that the pain is considerably worse. Getting up in the morning is a beast, ow. I am still taking the prednisone and advil, so once those kick in I feel ok, but then again in the evening the pain comes back.
I feel OK about this trade-off though. I can work through the pain, and there are meds I can take to help with the pain. The fatigue felt unfixable and it was miserable not being able to get off the couch for the past few months. Now I even have enough energy to cook dinner :)
One interesting thing is now that the other drugs are out of my system and the side effects of those drugs are gone, now the side effects of the prednisone are coming back. So I'm hungry hungry and talking a mile a minute again.
Other than what's mentioned above, the main other annoying symptom I have is ITCHING. Two kinds - one is just a general itchiness on my back and stomach - annoying. And the other feels like there is a bug crawling on my arm...really, I SWEAR there is a bug on my arm!!! -- but there's not. Ummm, ANNOYING!!
ta for now.
1 comment:
i know exactly what you mean - this is the first time i have had "validation"! i just thought i was crazy or something - creepyt crawly feelng on arms that is - i may still be crazy. Thnaks for having this blog - weirdly it is good to know others have the same "symptoms" so many think it is all in my head. i have been diagnosesd sionce i was 36 and will 50 next year - they told me i had 5-10 "good years" left - i have declined their advice and changed my eating habits and lifestyle and am still going strong!! :)
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